For Immediate Release
April 24, 2008

KDHE Office of Communications, 785-296-0461

MEDIA ADVISORY: Governor Sebelius; Hunter’s Hope Foundation
Celebrate Expanded Newborn Screening in Kansas

NFL Pro Hall of Fame quarterback Jim Kelly, Governor Kathleen Sebelius and Senator Vicki Schmidt will celebrate the upcoming expansion of newborn screening in Kansas with a news conference on April 29, 2008, at 1:30 in the Governor’s ceremonial office.

Jim Kelly and his wife Jill, established Hunter’s Hope Foundation in 1997, after their infant son, Hunter, was diagnosed with Krabbe leukodystrophy, an inherited, fatal, nervous system disease. The Foundation is the Kelly’s lifelong commitment to increase public awareness of leukodystrophies as well as to increase the likelihood of early detection and treatment.

Kansas currently screens for four genetic disorders and hearing for newborns. In 2007, the Kansas Legislature passed legislation expanding newborn screening to 29 tests. The expanded screening will begin July 1, 2008. More information about newborn screening in Kansas can be found at