Newborn Screening Program


Mother with her baby

Newborn Screening Follow-Up Program
1000 SW Jackson Suite 220 Topeka, KS 66612
Phone Number: (785) 291-3363
Fax Number: (785) 559-4245
kdhe.newbornscreening@ks.gov

 

The Kansas newborn screening program is a collaborative effort between public health, hospitals, providers and the parents of the infants screened. Screening is a public health service. Since 1965, it has been available to all infants in Kansas and it is done shortly after birth.

While most newborns look perfectly healthy, there are some diseases that aren't visible. Unless these diseases are identified and treated early, they can cause severe illness, developmental disability, or in some cases death. To test for these diseases, about 24 hours after birth, a baby's heel is pricked and a small sample of blood is collected by the hospital staff. This blood is then sent to the State public health laboratory where it is tested for several different diseases. If the test is abnormal, re-testing must be done to confirm a diagnosis.

State public health staff are available to notify and assist both providers and parents with next steps. Most infants with abnormal newborn screening results have normal re-testing. Initial NBS results can be abnormal because the blood was drawn too early, the baby is premature, and many other reasons. When the first screening test indicates a problem may be present, a second screening test is done to determine whether or not the infant needs to have diagnostic testing done. If a baby truly has a disease, a system of providers is available to assist the family with immediate treatment.

Kansas newborns are currently screened for 31 conditions recommended by the Secretary of the Department of Health & Human Services.

  • Screening - About 40,000 KS births/initial tests each year with about 2,000 needing retest,
  • Follow-up - Appropriate health care providers are notified and staff track to assure retesting,
  • Diagnosis - Newborns with positive screens see medical specialists for a final determination.
  • Management - Families and their infants receive ongoing care through a medical team.
  • Education - Information and education are available to families and to providers.
  • Evaluation - Advisory council oversees program/systems to ensure effectiveness/efficiency.

Newborn Screening Filter Paper Form Requests

Newborn screening filter paper forms can be ordered by mailing or faxing a completed order form to the Kansas Department of Health and Environmental Laboratories' Customer Service department. Click here for the order form.
Please click here for instructions on how to complete the Newborn Screening Filter Paper Form.

Newborn Screening Brochure Information

Kansas Newborn Screening Program brochures are available for your facility. To request brochures as well as other Newborn Screening educational resources, please contact our Newborn Screening Educator at kdhe.newbornscreening@ks.gov. Click here for the printable version of the brochure.

Report Request Form

Please use the Report Request Form to request additional copies of laboratory reports. One form is required for each patient. The form must be signed, dated and sent to the Kansas Health and Environmental Laboratories (KHEL) before any changes will be made to the current laboratory report delivery method. Please submit the Report Request Form to the contact info at the bottom of the form.

Updated Timing of Specimen Collection Regulation K.A.R. 28-4-503